What Happened to Nikki Lilly?

October 11, 2023

Nikki Lilly is a British charity campaigner, YouTuber, author and TV presenter with a rare medical condition called arteriovenous malformation (AVM). She began making vlogs on her Youtube channel when she was eight and has since gained a large following. Despite having a visible difference, she is able to connect with her viewers through her utmost authenticity and positivity. She has spoken about many topics, including bullying, mental health, baking and beauty, in her videos. She has even received an International Emmy Kids Award for her episode of CBBC’s My Life. She also supports Changing Faces, a charity that assists the 1.3 million people in the UK living with visible differences.

Having been diagnosed with AVM at the age of six, she has known from the start that she will never be considered "normal". Nikki has turned this on its head and is using her platform to raise awareness for people with different facial appearances and inspire young audiences to stand up against bullying and be proud of their differences.

Nikki is a busy girl with many commitments; she runs her own charity with her parents, speaks on panels and has appeared in Celebrity Supply Teacher doing a lesson on vlogging. She is the youngest person to ever receive a BAFTA Special Award and was awarded a Child of Courage award at the Pride of Britain awards in 2016. Despite having so much on her plate, she is determined to continue spreading positive messages, despite the challenges that may come her way.


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